I spent much of my childhood trying to hide my CF. But after an emergency double-lung transplant, the loss of my sister, and years of mental health challenges, I’m proud to belong to a CF community ...

Cystic fibrosis taught me to prepare for the worst, but pregnancy taught me to make room for hope and trust my body alongside medical care. Through my journey to motherhood, I learned that CF doesn’t ...

For those living with cystic fibrosis, it does not pause when you clock in to work. It doesn’t wait until meetings are over or the workday officially begins. CF is present long before arrival — in ...

An elite recognition and fundraising program celebrating Nashville’s most engaged young professionals. Know a standout young professional who is active in their career and community? Nominate them to ...

I used to measure my life with cystic fibrosis and CF–related diabetes (CFRD) in numbers. Lung function. A1C. Blood sugars. Weight. Enzymes. Appointments. I learned early on that survival meant ...

When you reach middle age, you start to realize that your body is beginning to break down. You wake up with a pain somewhere for no apparent reason that was never there before. You just don’t seem to ...

Persistence, resilience, and strength of character can overcome many obstacles in life. Marlene Pryson, 86, probably one of the oldest individuals living with cystic fibrosis, certainly possesses all ...

My family and I just made a huge move from Oklahoma to Oregon for my husband’s new job — our own Oregon Trail, but with meltdowns and caffeine instead of oxen and dysentery. Survival level: expert.

Jesus is a 37-year-old man who is proud to keep fighting against cystic fibrosis. Although he doesn't qualify for any modulators, he refuses to let that stop him from living life to the fullest. His ...

Lack of CF awareness, expertise, and health care infrastructure, especially in low- and middle-income countries, may prevent people living with cystic fibrosis from receiving timely and appropriate ...

I would like to bring you back to 2016. It was a HOT summer day. Air conditioning was blasting in the car and I was listening to country music. I was on my way to work and drove past the emergency ...

This blog contains content about an eating disorder. If you or someone you know has an eating disorder, contact the National Eating Disorders Association helpline by calling 1-800-931-2237.