Columnist Allyx Formalejo's husband, Jared, sustained a brain bleed two decades ago, but the resulting seizures still shape ...

We listened to the conversations happening across the hemophilia community to uncover the questions and challenges that matter most. In this video series, community members share their personal ...

Travel planning has changed in recent years for columnist Allyx Formalejo and her husband, Jared, who has hemophilia.

Many boys with hemophilia play sports regularly, but frequent activity may raise the risk of sports-induced bleeding, a study ...

A single infusion of gene therapy Beqvez led to sustained benefits over six years, results from a trial and extension study ...

A small survey in Germany found many men with severe hemophilia are not interested in gene therapy, which may suggest gaps in patient info.

For weeks, columnist Jennifer Lynne thought her lingering discomfort was "just pain," but it was actually a bleed.

Columnist Joe MacDonald's son Caeleb may need mobility assistance to get around an art museum, but that won't stop him from ...

A single dose of experimental gene therapy GS001 reduced bleeding episodes in men with severe hemophilia A, a study showed.

MacDonald is reminded about her son's hardships with hemophilia and has a glimpse at the adult he is becoming.

Living with hemophilia B and von Willebrand disease means getting used to things people may consider unusual, says columnist.

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Not long after I started working at the Hemophilia Federation of ...