BEST FOR THEIR CHILD. A DAY OF CARING AND A DAY OF HOPE FOR FAMILIES BATTLING A TERMINAL NEUROLOGICAL DISEASE FOR THEIR CHILDREN, GOVERNOR JIM PILLEN DECLARED JUNE 9TH AS BATTEN DISEASE AWARENESS DAY ...

Team Charlie is hosting its third annual Walk with Charlie, a community event that brings together community members, ...

Edie Dorrian was the daughter of former Belfast City councillor George Dorrian and his wife Lauren and was diagnosed with ...

GENTILLY, France, February 10, 2026--(BUSINESS WIRE)--THX Pharma (Theranexus) and Biocodex, an independent international pharmaceutical group, today announced the execution of a strategic licensing ...

A year ago, golf-course architect David Kahn and his wife Karen went public with every parent’s worst nightmare: their twin daughters Amelia and Makenzie are battling Batten disease, the cruelest ...

UPDATE: The 4th annual Take a Swing Fore Batten online auction will be accepting bids from March 15-29, 2021. Click here to browse the incredible collection of items, including tee times at Oakmont, ...

A treatment for juvenile Batten disease has been tested in a mouse model and the results have shown reduced in symptoms and improved longevity. The results of the study were published in Nature ...

WEBVTT THE SECOND ANNUAL BATTIN’ FOR BATTEN IS ALL FUN AND GAMES AND HOPES TO RAISE MONEY FOR DREW’S FUTURE. DREW SILLMAN IS 7-YEARS-OLD AND ALREADY THE JUVENILE BATTEN’S DISEASE HAS TAKEN MOST OF HIS ...

Kristyna Wentz-Graff / OHSU Scientists at Oregon’s National Primate Research Center recently found some of their Japanese macaque monkeys had developed Batten disease. The outbreak was naturally ...

In episode three of Hulu's TV show, The Act, Gypsy Rose and Dee Dee Blanchard attend a cosplay convention. There, Dee Dee meets a man whose son suffered from (and later died of) Batten disease. Batten ...