Columnist Jennifer Lynne is heartened by this week's livestream event on bleeding disorders, but says awareness must lead to ...

When talking to your child with hemophilia about risk-taking, it's important to balance their safety and independence.

Columnist Joe MacDonald writes about his early reluctance to share his story as a caregiver, and of the connection that occurred when he did.

H901, the first in use in China for adults with moderate to severe hemophilia B, has now also been approved in Macao.

Columnist Allyx Formalejo's husband, Jared, sustained a brain bleed two decades ago, but the resulting seizures still shape ...

A small survey in Germany found many men with severe hemophilia are not interested in gene therapy, which may suggest gaps in ...

Travel planning has changed in recent years for columnist Allyx Formalejo and her husband, Jared, who has hemophilia.

We listened to the conversations happening across the hemophilia community to uncover the questions and challenges that matter most. In this video series, community members share their personal ...

For weeks, columnist Jennifer Lynne thought her lingering discomfort was "just pain," but it was actually a bleed.

Columnist Joe MacDonald's son Caeleb may need mobility assistance to get around an art museum, but that won't stop him from ...

A single dose of experimental gene therapy GS001 reduced bleeding episodes in men with severe hemophilia A, a study showed.

MacDonald is reminded about her son's hardships with hemophilia and has a glimpse at the adult he is becoming.